Preview Mode Links will not work in preview mode

This podcast's purpose is to bring together the field of neuroprosthetics/brain machine interfaces/brain implants in an understandable conversation about the current topics and breakthroughs.

We hope to replace needing to read scientific papers on new research in an easy to digest way.

People can share thoughts or ideas to facilitate 'idea sex' to make the field of brain implants a smaller and more personal space.

  1. All Episodes
  2. Benjamin Stecher on being a Parkinson's patient advocate

Benjamin Stecher on being a Parkinson's patient advocate

Aug 1, 2022

Benjamin Stecher runs a blog called the Tomorrow Edition where he talks about his battle with Parkinson's disease. He has been implanted with a Deep Brain Stimulator an is also on the patient advisory board of Rune Labs where he gives them a perspective from the patient's point of view.

***This podcast is sponsored by Ripple Neuro, check out their Neuroscience Research Tools here***

Top 3 Takeaways:

  •  "It got to the point where the Livadopa medication on-off fluctuations were so impairing to my daily life that I had maybe like an hour where I felt normal per day"

  • "But to compare it to the medication now, it's night and day. It brought my baseline to the point where I felt more or less normal. Now I'm still not completely normal, things need to be optimized, but it's night and day compared to what it was before. It's very easy now for me to have these moments where I even forget that I have this disease at all "

  • "There's nothing in my brain that anybody can point to and say, okay, this is what Parkinson's disease is. I don't believe that Parkinson's Disease exists"

1:00 Do you want to talk about your background?

2:45 "You were pretty young when you were diagnosed with Parkinson's disease. Do you want to talk about that?"

3:30 "What was the timeline of the disease?"

6:15 "You decided to crack your skull open and then put something in there. What was that kind of decision like? And then what were the results of that as well?"

7:30 Sponsorship by Ripple Neuro

7:45 "What's it been like and maybe how does it compare to the medication and was the results immediate?"

9:15 "You have an adaptive DBS implanted. Do you want to explain what this is?"

14:15 "Let's talk about your blog Tomorrow Edition"

15:30 "Let's talk about your work at Rune labs"

17:30 "Let's talk about your book to Brain Fables"

23:00 "If you had a magic wand, what would you be doing and what kind of improvements would you want to do?"

27:15 "Is there anything that we didn't talk about that you wanted to mention?"

benjaminstecher@gmail.com